i’ve been doing some thinking and i’ve decided to move accounts both because i’m sick of this username and because this blog is too crowded
my new url is midnight-chase.tumblr.com
i’ve been doing some thinking and i’ve decided to move accounts both because i’m sick of this username and because this blog is too crowded
my new url is midnight-chase.tumblr.com
i’ve been doing some thinking and i’ve decided to move accounts both because i’m sick of this username and because this blog is too crowded
my new url is midnight-chase.tumblr.com
i’ve been doing some thinking and i’ve decided to move accounts both because i’m sick of this username and because this blog is too crowded
my new url is midnight-chase.tumblr.com
i’ve been doing some thinking and i’ve decided to move accounts both because i’m sick of this username and because this blog is too crowded
my new url is midnight-chase.tumblr.com
This is Naomi Schwartz, she is a 14-year-old girl from Palm Beach Florida who is battling a rare form of cancer which requires a bone marrow transplant. She is mixed race, her mother is a brown Puerto Rican woman and her father is Ashkenazi Jewish, and as a result, currently has no matches in her family or in bone marrow databases. Naomi’s family ran a drive to try to find a match for her, but that’s no guarantee she will find one. I thought I would use my platform here to encourage people or people you know, especially with a similar background to Naomi, to register on bethematch.org.
I don’t usually add onto posts but I would like to say that I recently had a bone marrow transplant due to cancer as well. I learned a lot about bone marrow transplants due to this and it’s something that was totally off my radar until I was in it. The Bone Marrow donor pool is extremely white. On average a white person has a 77% chance of finding a match in the pool, it drops significantly for people of different ethnicities. My specific “white european” genetics made my chance personally 93% and because my sister wasn’t a match mine came from the registry and they were a “perfect” match, this literally saved my life. I hope dearly that Naomi can find a donor, I also hope that you consider sending a away for a kit if you can and especially if you can help widen the donor pool. It’s super easy, and it means life or death for those of us handed a very difficult kind of cancer or other rare diseases.
This is from the be the match site giving the average stats for people by ethnicity:
Relevant to Naomi, It said in the article that people with a mixed ethnic background have a 15% chance of finding a donor match, also!
Many bone marrow donor registries also look internationally. In Australia you can sign up at Strength To Give.
[ID: 1: a photo of naomi. she is a smiling light-skinned girl with curly black hair.
2: an infographic with the header, “Likelihood of finding a Matched Adult Donor on the Be The Match Registry®️ by Patient Ethnicity*”. the note at the bottom reads, “*Patients are most likely to match an adult donor of their own ethnic background.” the infographic shows the following statistics:
African American or Black - 23%
Asian or Pacific Islander - 41%
Hispanic or Latino - 46%
[Native American] or Alaska Native - 57%
White - 77%]
I’ve been keeping up with what’s going on w/ Naomi and haven’t seen any update since her family held the potential bone marrow donors event on the 5th. But I’ll let you all know when I do. Aside from a direct link to bethematch.org there’s also a text link that can help you get started by texting Hope4naomi at 61474
